“Tony Says, ‘I Fucking Knew It. And Let Me Tell You, It Was an Absolute Shit Show When It Came to Getting Tested or Treated.
JULY 23 (Saturday night). My lymph nodes in my groin became very swollen.
JULY 24 (Sunday night). A giant, pea-sized lesion forms on my penis. It was the weirdest-looking thing and was perfectly symmetrical. I’m 90% positive it’s the pox.
JULY 25 (Monday morning). I send my primary care physician a note, describing the lesion and my lymph nodes and say I think I have Monkeypox. I don’t hear from my physician for another day and they direct me to the health department. I take off work and go to urgent care. The doctor thinks it’s herpes, even though the lesion does not hurt (and symptoms of herpes include painful lesions). She prescribes me Valacyclovir. I think she’s wrong so the next day I go see another urgent care doctor. I later called the health department and they told me to call my Primary care physician . I then manage to speak to someone a little more competent, but she told me to call back if I develop more symptoms.
JULY 26 ( Tuesday). I go see another urgent care and this time doctor thinks it’s syphilis. In the meantime, she tests me for everything (HIV, hep, gonorrhea, chlamydia, syphilis, etc.). She puts me on doxycycline for suspected syphilis. I tell her I think it’s Monkeypox and she goes, “Everyone thinks they have monkeypox.”
JULY 27 (Wednesday). I get a really high fever (102.8F at one point).
JULY 28 (Thursday). It hurts to urinate (extremely painful) and more, tiny lesions begin to develop on the shaft of my penis. They are a bit painful, but nothing I can’t manage.
JULY 29 (Friday). I go back to Urgent Care #2. My HIV and syphilis tests come back negative. She tells me she doesn’t know WTF is going on, and recommends I go to emergency. The doctor doesn’t know what it is but doesn’t test me for Monkeypox. He prescribes me Phenazopyridine for the painful urination (which turned my pee orange/red, something I didn’t know and that freaked me out). Later that night, I notice a lesion on my hand. I have never in my life had a lesion that looks like this. It’s puss-colored and round. I’m 99.99% sure it’s Monkeypox.
JULY 30 (Saturday). I call around to see who will test for Monkeypox, but it’s Saturday so I’m not getting my hopes up. I finally spoke to an extremely knowledgeable woman at the health department who tells me where to go to get tested. I also tell her of the abject failure of the other health professionals I spoke to (one lady in an ER flat out told me that an Monkeypox vaccine does not exist). I go to an ER and I ask to get tested for Monkeypox. The lady tells me that I cannot get tested and is kinda rude about it. Then she asks me if I’m in pain, and I was like yeah (because of my swollen lymph nodes and painful urination). So the only fucking way I got by was because I was in pain. Otherwise, I would not have been able to get tested. They swab and test me for other STDS, including herpes and gonorrhea. I keep beating the Monkeypox drum and they also swab me for that. They later find that I had a UTI, which probably caused the painful urination. They give me an antibiotic IV for that. A couple of lesions pop up on my forehead. Not painful at all. And some other pimples in various places on my body. They’re a little itchy, but not painful. I’m describing my earlier symptoms to my doctor and he’s like, “Maybe it’s HIV.” It’s not; I just tested negative and I’m on PREP. Then he considers my lesions and is like, “Maybe he’s herpes.”
JULY 31 (Sunday). The next day, my herpes and gonorrhea tests come back and they’re negative, just like everything else. So….the only thing left. Earlier tonight, I decide to open up my hospital tests, and I see: “MONKEY POX PCR: DETECTED” I knew it all along. The lesion on my dick was the give away. The fever and lymph nodes could have been attributed to the Monkeypox or the UTI for all I know, but the lesion was the one thing I was sure of that meant that it was Monkey pox. I’m really annoyed at how dismissive everyone was of it being Monkeypox. I even told everyone that I’m gay (and sleep with other men) and that I’m sexually active. And the one lady in the ER wouldn’t even admit me unless I was in actual pain. So, there’s my story. Hope it can serve as some help for others….mostly for symptoms and how practically no one will believe it’s Monkeypox.
Tony lives in (United States)
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